If you haven’t yet responded to my 2-question survey, it’s not too late. You can leave you answers in the comments, or email them to me using the contact form.
Thanks so much for your help!
Questions:
- What drew you to Cranky Fibro Girl, and what keeps you coming back to read more?
- What are your top 1-3 problems, challenges, or issues when it comes to your chronic illness?
1. A mutual friend, Kat Bowling suggested I check you out. Love the snarky, snotty, “inappropriate” humor which is just like mine keeps me interested.
2. Top 3 challenges with FM, BP, and xyz:
–unfreakinbelievable fatigue; on a good day my tank is half full, but tons better than when I was bedridden for 2 years;
–my docs being scared of the DEA and really wanting me to get off narcotic pain meds more quickly than my game plan, but it’s all good…I have wine;
–my brain, what’s left of it, often misfiring, but good thing I started out with a bigger one than the average person.
HA, HA
Rest up; I so get needing to give ourselves to be what we perceive as slack or non-productive while overlooking how much we do get done, even if it’s making it from the bed to the couch! SCORE!!
PS: Contact form “send”not working
Regarding your questions: 1. I think I found you from another blog – Julie Ryan probably. And 2. PAIN, it’s overwhelming sometimes!! I told my husband during a particularly awful flare – ‘there is no way anyone could possibly understand the level of pain we endure without experiencing it.’ Another issue is fatigue – not enough energy ever to get the stuff done I need to, let alone WANT to do! 🙁 miss my ‘old self’ a lot and that gets depressing. Final issue I’ll mention… people don’t ‘get it’ because you don’t LOOK SICK!!! sucks to suffer day in and day out and fake through it at work just to go home and cry half the night because you overdid it – again. 🙁
1. Your humor is a ray of sunshine that lifts me up on the gloomiest days.
2. When I read posts that people write about how well they are coping with fibromyalgia and they are ultra positive, it makes me feel that I’m not doing a very good job of dealing with my illness. A little gripping with some humor is so welcome! Another challenge is depression that rises up during a flare. My prayers are with you as you are facing your current challenges.
1. I researched blogs because I just needed to know that someone else “gets it”. I’m sick of having to justify my pain, my feelings to people who just don’t understand. I look normal, therefore I must be normal. Ummm….not so much. Little do they know, my body is screaming inside. I chose to follow your blog because I appreciate your snarky take on it. Your sarcastic humor is on point with mine. Sometimes you just have to laugh, otherwise I would spend all day crying.
2. The fatigue, overactive bladder and the pain. I can’t remember what it is like to sleep more than 2 hours at a time. I am constantly getting up in the middle of the night to pee (3-5 times). I am exhausted. The dark circles under my eyes have taken up permanent residency. I’m sick of people telling me I look tired. No shit. I AM tired. There are days I spend an hour just sitting on the edge of my bed, willing myself to get up. Preparing for that jarring, breath taking, unfathomable pain that will shoot through my entire body the moment I stand up. But I do it, EVERY day, I do it.
1. Doing some research and came across your blog. Really enjoy your sense of humor and knowing someone else truly “gets it”.
2. Fear is a big one. Fear that I may not be able to work until retirement. I’m my sole source of support. I don’t want to end up eating generic dog food three days out the week because that’s all I’ll be able to afford. Being single and working in human services = crappy pay. How long will I be able to work two jobs? I really miss having energy and feel as though my body has turned against me! Tired of having to justify fatigue, etc. to family and answering the same inane questions over and over. If I knew how to fix it, don’t you think I would have fixed it? If you are truly interested, then listen for a change or do some research yourselves, dammit. Stop asking the same stupid questions over and over and then get annoyed when I can’t answer them to your satisfaction.
1) I wanted to hear stories from other women about their daily struggles with fibro. I was diagnosed a week ago and I am on a rampage for information. I am also diagnosed with bipolar I, ptsd, anxiety, depression, and ADHD. so I relate to you heavily. I think your approach to coping with it by using jokes and funny terminology to describe your experiences is extremely validating and also hilarious.
2) 1st problem: the guilt behind not being able to take proper care of my toddler when I’m having a flare up
2nd problem: not being taken seriously by PCP’s
3rd problem: people thinking im overly medicated and a hypochondriac because I have all these diagnosis and treatments even though it is the only reason I can function at all in my job or otherwise